“How long do you think you have at the current level of physical function, and are you taking that into account as you look at the next x years of your life. That house seems to have a lot of steps, for example. Besides getting more rest because you consciously rest, are you thinking about how your environment impacts you in the long term? For example- in our new house we put a 3/4 bath on the main level, and planned a path to retrofit an elevator if necessary in the future. The doorways were planned to be wheelchair friendly on the main level. We’ve had enough short- medium term health things that have required avoiding stairs to know how important that is. Are you planning for the house to help you be in less pain?”

This is a hard one. I have absolutely no way of predicting when my body is going to fail. But yes, I need to be planning around a ground floor bedroom for me even if everyone else is up stairs. No doctors have been able to give me a timeline on my failing body. Frankly mostly they express shock that I am still moving.

I’m not planning around this how I should be.

I need to be honest that the reason I can handle coping with this apartment only being cleaned to the level the kids and Noah want to clean it is because it is half the space we are used to and we are leaving soon so the corners of muck aren’t my problem.

I am way past the point where some rest is going to restore my vitality. My vitality is gone. I am playing a losing game until I die. But will that be a fast five years or thirty years of a slow but steady decline? Will I last fifty years?

I don’t know. I know that my great grandmother was considered too mean to die. I like to think I will live long enough to be a torment to my grand children. I’ll be the grandmother who says no and means it. Ha.

I’m actually finding this upsetting to think about. I don’t know how long I will have this level of functionality. I know that keeping as much movement as possible in my day to day life will increase how long I keep this level of function. Any movement in the direction of being sedentary causes me problems. The more I sit the more I hurt. Stairs are a mixed bag but walking upwards of three miles a day really helps. My hips hurt, but they hurt more when they are locked.

I’m really sad thinking about the ticking time bomb of my body.

I travel like I do right now because I will almost certainly not be able to do this when I am old.