Monthly Archives: November 2020

On the fourth day of med trial my body gave to me…

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I slept from 8pm to about 6am. I woke up earlier with the vague belief that I should probably get up and pee… but I didn’t bother and went back to sleep instead. That’s nearly unheard of for me.

So… last night I had some cocodamol and two glasses of wine. I have very mixed feelings about how hard my body resists sedatives but I’m fucking tired and if it takes a lot sometimes I’m going to knock myself over the head with a hammer.

I’ve had a few bursts of severe pain in my hand/arm/elbow/shoulder. I attribute that to working. Which… is a mixed bag. I don’t need pain meds tonight. My back is sore and icki but I don’t feel like I want to cry.

Today I have been alert and energetic and I’ve gotten a lot of chores done. I haven’t felt slow or impeded. I don’t feel the same sense of time distortion. I feel a little tired in the “Jesus I’m years in the hole on sleep deprivation” sense but not bad or worn out for me.

I have 15 books and 32 days to go on my reading challenge. I’m almost done with one. I may even be able to finish tonight. We’ll see….

On the third day of med trial my body gave to meeeeee

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Very little notice that I am using anything new. I would say that today I felt incredibly close to normal. I feel like I was a little slowed down but in the “I need more sleep and I’m working too hard” sense rather than in the “Holy shit I’m swimming through molasses” sense. I probably feel less of a malaise of depression. Today I was more patient with the kids than I have been on a lot of days lately.

I didn’t do as much exercising as yesterday (only walked 2 miles but I rode my bike almost 5 miles and that didn’t feel hard at all–more than a mile of it was up an extremely steep hill). We went out and picked litter with a group who has been moving around the city trying to help out in different areas every weekend. It was very productive and nice. Gotta meet our local hippie comrades.

I took the pill at 5:30 tonight because 6pm last night didn’t have me feeling sleepy till 9. I also took some pain medication tonight because my back and neck are in full on fuck-you mode and I can’t keep this up.

I don’t know that it is making a big difference in the nerve pain. My hand is still going numb quite easily. My elbow is on fire. My upper arm is numb until you touch it then it tingles and hurts. I can’t reach the wound site to see how tender that is by myself.

Overall I would say that right this minute I think this dosage is not a serious/permanent solution to the problem but the side effect profile is not so bad that I am terrified of upping the dosage to play with it. I am currently taking 10mg and up to 75mg/day is within normal expected range. Apparently it is expected that it might take 6 weeks to be effective as a pain killer. As of this evening I feel very comfortable with being willing to test that long. That’s actually a pretty resounding endorsement from me. Normally 3 days into a drug means I’m already trying to figure out how to get the fuck off it.

So I’d say a C+ or B- right now? I’d like more impact on nerve pain. It could definitely do more for actual depression and anxiety. But it is a start and it’s not a bad start.

And this is all fucking free.

Another day, another chance to record what’s happening

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Med responses are very important to me. I am upset that I have so few written records of my previous drug attempts. Oh, by the way my oldest heard me make a crack about having a hangover from the drug and she flipped out. She thought I was using hard street drugs because I had just run out of cope.

Serves me right for not telling my kids in advance absolutely everything I do with my body I guess?

Today was different. Less exhaustion. I woke up at 4 for a trip to the loo. I didn’t get back to sleep for close to an hour then I was up by 6:30. I took the pill at 7 last night and was asleep by 8:30.

Tonight I took the pill at 6.

Today we had already made plans to go for a walk in the woods with a family who lives about 1.5 miles away from us who are new to home education. They have a 9 year old boy and an 11 year old girl. The two of them both turned up saying that they were hoping for a kid of their gender. I said, “How would a non-binary kid who is not a boy and not a girl who likes to do things regardless of gender fit?” They had about two questions then they both went with it. For the record: that’s where middle kid is at again.

Anyway, I was… more calm than usual? I felt like my brain was slower and on the sluggish side. It was a less pleasant experience than pot but not completely dissimilar? I didn’t have any of the uplift I get from pot but I got a little bit of the “pause” between having a thought and reacting.

My feet are going to sleep ridiculously quickly. If I kneel down to put stuff in a drawer it doesn’t take 2 minutes. Usually I can kneel for 10-15 minutes before my feet fall asleep.

My back has been hurting quite badly all day. Of course I have walked 6.5 miles after it hurt when I woke up. Cause yeah. I carried the littlest home for the final mile because she was utterly wasted.

I’m still having some nerve pain in my arms if I tweak them up to use them in an unusual position. (Putting the baby in the back carrier was a bit festive.) I feel a lot of tightness and general arm unhappiness. I have fairly deliberately not typed much today trying to rest. (Really the last couple of days.)

I have very much wanted to not add more medication to this in the first few days. So I’m not taking anything for the back pain or headache. I want to have a really solid idea of what is coming from the Amitriptyline. Normally I would definitely be medicating for those at this point because it hurts.

I’m having massive time dilation. I can check and see this is the end of the second day. It feels like a lot more than that. I labeled the pill packet with the exact date I am supposed to take each pill because I am worried about taking too much or skipping a day and not noticing.

I am utterly out of patience with the kids but I think that was happening before the meds. Right now it is hard to remember.

In unrelated news: I have 17 books to read in 34 days. Time for some graphic novels (Neil Gaiman’s American Gods 1 & 1). In another day I can finish The Cooking Gene, and I need to sit the kids down and finish Odd Girl Out. That will leave me with 14 books to go. Eep. Maybe my goal was a tad ambitious for this year…

New med tracking

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Started Amitriptyline last night, primarily for nerve pain. I got a solid 8 hours of sleep, which I don’t always do and that seems nice. As I was going to sleep I felt like I got to watch a firework show on my eyelids. Lots of bright white lights dancing. As is typical for me it took more like an hour and a half to really hit me instead of an hour.

ETA: Yeah, I barely stayed awake long enough to eat a little breakfast then I almost passed out on the table so I crawled back to bed. I was in and out for a while making sure that oldest got to school. Then I slept hard until 10:30 when I could tell that I needed to go to the bathroom to deal with blood (it’s the heaviest day of my period. What glorious timing).

My dreams were super intense and overwhelming and constant and highly sexual which I did not expect on a medication known for lowering libido.

I am so groggy that middle kid has been talking at me for a while and I have literally not retained a word of what has been said. I feel slow and stupid and exhausted.

It’s a very good thing I homeschool my 10 year old and Noah works from home because I don’t know how I could have provided care for the 2 year old today while alone. Scary thought. Woof.

I have a really intense headache at the back of my head near the top of the spine and it shoots straight through the skull to make it throb hard on my left temple. My mouth has been throbbing, which is a weird ass feeling. I keep feeling like I am falling only I’m lying prone at the time.

Strangely it was easier to sleep than usual because even though my neck/head hurt quite badly my shoulders already feel a little easier. It didn’t instantly hurt lying on my side. If I reach back gently the surgical wound site still hurts.

The headache is absolutely massive but I am worried about taking another medication on top of what is in my system.

I am sad because my lack of help today is going to mean that Noah has to work more days into December. (He was going to take the month off.) But at least I think it’ll only be a couple of days next week and not the whole month.

Also of note: my typing has been super shitty. It’s taking me 3-8 tries to figure out how to spell a lot of basic words. Yay spell check preventing me from looking in writing as stupid as I feel.

Everything hurts

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I’ve been trying really hard not to complain. Things are tough all over right now.

I’m having problems with my shoulder. Almost 11 months ago I had surgery to remove skin cancer. I had fairly extreme wound dehiscence. If you don’t know what that is (lucky you) it means after a surgery the healing wound site pops open. It was pretty fucking gory and bloody and resulted in a giant, garish, ugly scar. I don’t care that much about it being ugly.

I care that it still hurts. If I lean back on a chair a little too suddenly it hurts. If Noah gently strokes my back and he gets to within an inch of the wound I feel so much pain that my knees turn to jelly. I am not a wimp. I can endure significant pain.

My shoulders have been in bad shape for over 11 years due to nursing all night long with my oldest child and sleeping on my side in a rigid position. But it’s so bad now that I feel pretty constant pain. I miss chiropractic care and massage but with Covid it doesn’t feel like a good idea to be pursuing these sorts of intimate treatments.

Instead I endure. My brain feels cloudy. I know I am more irritable than I would be otherwise. It’s harder dealing with my general feelings of depression.

When I say it hurts I mean lifting a pot of tea to pour a cup hurts. Sometimes there is burning and stabbing pain all the way up and down my arm. Washing dishes is really painful; the pinching movement of holding things as part of the process is nasty.

To give you a bit of perspective… I have finally cracked. House cleaners are going to start coming to the house. That’s a pretty gigantic admission of defeat for me. I need help because I can’t do as much anymore because it hurts too much. I feel really despondent about this. I feel pathetic. I feel sad. I feel weak. I feel like a failure. I literally cannot carry my third child the way I did with my first two. She has to walk. Pushing a stroller is horribly painful. She has to walk. Luckily riding my bike is fairly comfortable because I have worked hard at adjusting the positioning of everything so the only time I really put pressure on my hands is when I am actively braking.

I often wake up with intense, nearly blinding pain in my neck and shoulder. I feel so embarrassed when I take pain medication first thing in the morning. It’s not that anyone in my family judges me. But I didn’t want to grow up and be like my mother.

I think I should probably reach out to the medical staff, dermatologist probably? But with Covid and cancer patients and people with urgent medical problems not being able to access necessary-for-life care I don’t feel at all comfortable raising my hand and asking for help.

So instead I sit in my house and I take the over the counter pain meds and I cry. I don’t feel any hope about ever feeling good in my body again. I am very scared of the degradation that is coming. There is nothing I can do about it. I just get to endure it. I made commitments and I take them very seriously. I will be here as long as I am physically capable of clawing my way through.

It’s going to hurt so very much and I’m scared.