It’s weird having a 16 year old. In many ways it feels like I should have this person basically cooked and ready to be an adult. Yet sometimes it is glaringly obvious that he still *needs* me. I’ve been antsy during this surgery recovery. I really *want* to get up and work/exercise more. I am struggling with the bullet train inner monologue of “If you sit around all the time you don’t deserve sympathy/help for your health problems. You aren’t looking after yourself so you deserve every bad thing that happens.”

He’s been talking a lot about how scared he was when he watched me have massive life threatening bleeds after surgeries. He’s kinda fucked up about it.

I am currently in the period of time where a normal person *should* return to exercising.

I am still experiencing pain. I am now in the window of time where I normally start to push myself.

Then either my skin opens or a blood vessel bursts. It’s part of a genetic condition. It’s predictable. Especially since it’s happened *in my body* several times. It’s not paranoia. It’s awareness of risk.

This is where “invisible disability” stuff is hard. It’s hard to predict and make general statements about. It’s hard to exist in a way that allows people to understand when you do and don’t need help that is friendly and kind and gentle enough that they don’t get mad at you.