The NHS is going to be a mixed bag for me

I am experiencing some frustration. This week I learned that the NHS would have denied me the vast majority of the care I received in California because a lot of it ran concurrently. In Scotland one is not allowed to work with multiple therapists and on varying parts of mental and physical health at the same time. It is medical malpractice in this country.

Well, shit.

It was kind of fun recognising that I will have to route around the NHS while in an appointment with a psychiatrist. She got to try and talk me into not giving up on myself. If I come back and beg enough times maybe the NHS will agree to me having more than one form of care over a long period of time where they control all the aspects of deciding what and when.

Oh. It’s like that, is it?

I am going to learn a lot more about private health care in this country and I’m going to get better about lying and denying the care I am receiving. That sucks. I’m not really into lying as a lifestyle.

The NHS will not allow me to have EMDR before the trial. Thing is, I’m not sleeping so good. Flashbacks/abreactions are really bringing me down. My PTSD responses are really dramatic compared to where they have been for years.

The NHS won’t allow me to talk to anyone else while I’m talking to the nice counsellour lady in town. The nice lady who is a student. The nice lady who works for an agency that is supposed to get me help as an overwhelmed mom supporting disabled kids.

That’s what I get.

She’s a nice gal and maybe I am underestimating where I am going to get in the 6 sessions I have with her before I maybe get another 6 sessions through a different charity agency.

Yeah. That’s going to dramatically alter my life trajectory. I’ve been through 34 years of trauma therapy. I’m sure this student will dramatically make progress with my usually “treatment resistant” PTSD in 6 hours. It’s going to miraculous.

I feel very much like I need to settle down and become a wraith. This country favours passivity and non-action in a way that is going to be a problem for me. I am not a person who sits and waits doing nothing. That leads to deep depression and self harming behaviour that I can no longer sustain physically. I can’t. I can’t go back to hurting myself to cope. Too many pieces of me are broken in ways that could be life ending if I keep it up. Too many head injuries.

Is it weird that I am not fucking ok with the idea of accidentally killing myself in a panic attack in a form of self harm that I intend to be a momentary relief of pain going too far?

If I am going to kill myself it is going to be in some way that is absolutely unmistakable. I don’t want to accidentally cause a stroke. Fuck that shit. If I swim out into the North Sea or go to a supervised euthanasia clinic so you fucking know I picked that. I desperately hope that the people who love me will find a piece of comfort in knowing that I waited as long as I possibly could. I know that probably something is just to break on its own and it won’t be my choice and that’s ok too. Then it really isn’t my fault in the same way and it won’t hurt the people who love me in the same way.

I can’t accidentally kill myself by going too far with cutting. That’s not ok. That kind of thing is messy and dramatic and traumatic in a way I don’t want.

Today is not as bad as a lot of days have been this week but I’m still not feeling strongly attached to the idea of being alive. I can’t hasten my death, and in fact I am required to act in ways that will push it away to further in the distance. It’s feeling really hard.

Like most people I don’t love being in pain. It is hard knowing there isn’t a way out. I sure as shit am not going to be asking for much of the NHS. As much as I don’t love being in pain I’d rather just go through my life in pain instead of hearing over and over that I am not good enough for the thing I know will help me. I don’t qualify. I haven’t jumped enough hoops. Why don’t I jump a little higher and wait a little longer?

These are the people who think I shouldn’t be allowed to have the sex life I want or the marriage I want and they probably think I shouldn’t have been allowed to have children. I should have waited until I was all better to go have these normal things. I haven’t done enough time waiting to deserve the things that other people get as table stakes. I’ve heard this story my whole life.

I am allowed to have what those people need. Fuck my needs.

This is where I am an absolute rubbish example of living consent culture. I was told no, I couldn’t have what I asked for. So I went out and found a way to fucking steal it anyway.

Not exactly but it sure feels like it standing where I am in this moment. Really I just found a way to pay for it and I hunted high and low before I found people who would help me on my journey. I’ve done a lot of things to try and be more ok. I’ve been doing really well for a lot of years now with only a fairly normal person amount of range of volatility.

But hey, it doesn’t even count as rape in this country. It shouldn’t bother me so much.

In a major way I feel like I am far more wounded by how this affecting Noah than I am by the assault. My life is different than it was 4 months ago in ways that feel savagely unfair and painful.

I’m not working hard at chasing down Vicki interviews. I can’t focus. I can barely think. My productivity is somewhere between 25% and 50% of my normal and it feels like an enormous stretch goal.

I feel like a wraith who should fade away to mist. The fire and energy that usually propel my survival have abandoned me. I don’t feel like I have enough faith in what I am going to do moving forward to just charge forward blindly with great force. I don’t have the energy for a bunch of false starts. I don’t. I want to curl up under a bush and never come out and let my body go back into the earth.

I feel ineffective. I feel useless. I feel like there is no point to how hard I work because it will always come back to how fucking worthless I am.

It’s hard home educating three autistic kids. They need a lot from me. Most of it I have to repeat many times. It’s exhausting. I feel like depression is covering me like a weighted blanket on top of the burn out I’ve been feeling for a long time.

One of the hardest things about the way we home educate is we don’t have the neat and tidy ways to check and see if you are doing it right. We don’t have marking periods and standardised tests. We are just living and no matter how much I do for them I never feel like I have done enough. I always feel like I am failing to teach them a lot of the things they are going to need to know. I felt like that as a classroom teacher too, even though my students went up by more than one grade level on average after a year with me. Many of my students caught up on four or six years of learning with me because I could tune in to where they needed to be reached. I worked with kids who had a lot of emotional struggles.

My adult life has been spent trying to give children the things I never got and I am feeling like a very empty bucket. I have been doing this work for 24 years now. Hell, I was a nanny and a babysitter before then. Normally I’m pretty ok with taking it in stride that young people need a lot of reminders. Right now it is hurting me desperately.

I don’t think anyone is doing anything wrong in my house. It’s hard when I’m off my game. Noah does a lot of consistency management for our family but I’m usually the motor. I feel like I lost some integral part of my mechanism and the gears are just not going and I don’t know what to do.

No, I don’t want psych meds. They are not going to clear the cobwebs they are going to make my body start feeling like I am trying to kill it. No. I have walked that road. I’ve tried so many drugs that doctors pushed on me.

EMDR would be very helpful. I’m going to look for private. I think that’s a thing I can make happen. Holy shit. Maybe I really fucking should not. I am not a good liar. I’d really like to sleep better.

It’s been hurting so much that this overlapped with getting kicked out of bike stuff. The woman who had invited me into things in the first place no longer wants me there. She asked me to stop coming because I make her uncomfortable. It’s not that “everyone” there dislikes me–she was the person I was there to get to know because I liked her. I never tried hard to get to know anyone else because my assumption was that I would be too weird. I hope they do well in the future. I think it is important work.

It is not the fault of Highland Pride that I was sexually assaulted in any way shape or form. I am going to be scared to step forward with that community in the future anyway. I feel like I am trying to back out of a lot of kink stuff locally because I am obviously making so many people feel uncomfortable.

Hey look, the bitch who was “too much” in California is also too much in small town Scotland. Duh.

Maybe if I hide for a while before coming back some of my spiky edges will be forgotten. Maybe I will figure out some piece of work to do that will buy me a place even though I am so awful.

I don’t really have hope for things feeling better right now. I know they will at some point but in this moment that seems ridiculously impossible. This always/never place is really dark. I feel scared and empty. I don’t know how to keep giving right now without a lot of very bitter and sharp detritus coming out instead of water.

I’m in a bad place. It is what it is. There is no way out other than going through it.

I know Noah is trying to walk it back because this is hurting me, but I am deeply wounded by him saying that I betrayed him in this situation. I feel wrecked by this. I wasn’t a little bit bad I was so bad.

Right now I feel like I don’t know how to be good enough to deserve anything good. All I deserve is pain until I die. I’m not working enough to be a good tool. I do bad things that hurt people. I speak too sharply because my entire consciousness is permeated with pain and it leaks out and then I am even more bad.

I feel like no one should have to deal with someone as awful as me. I feel empty of goodness. If I ever had any it is gone.

All that is left is a haze of inefficient malice.

See, I’m being good. This is not social media where I will have lots of people yell at me that I am bad for saying any of this because it is not fair that I am “triggering them”.

Fuck me. Why don’t I just shut up or die already?

One thought on “The NHS is going to be a mixed bag for me

  1. Noah

    That’s an *interesting* report about pre-trial therapy. It sounds like there’s no specific reason *not* to do pre-trial EMDR, but also that you may be asked about it. There’s a list of things that are perceived to potentially cause problems:

    > It has been argued (without specific evidence being provided) that a number of therapeutic techniques are associated with an increased risk of false memories, including guided imagery, dream interpretation, free association and hypnotic age regression. Whilst these techniques have a recognised place in therapy, victims should be informed of how these techniques can be viewed given the (undetermined) risk of incurring false memories.

    So, probably good to avoid those things between now and the trial.

    > I know Noah is trying to walk it back because this is hurting me, but I am deeply wounded by him saying that I betrayed him in this situation. I feel *wrecked* by this. I wasn’t a little bit bad I was *so bad*.

    There’s a lot there. And some of it’s complicated. And some of it I don’t feel like I understand. And some of it, if I *do* understand, is still going to be ugly (and yet maybe I’m just wrong).

    This feels like the wrong time to try to hash through this part now, but at some point we’ll need to. We’re both really wounded there, which makes it a lot harder to sympathise with each other.

    Reply

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