That’s the expression I use for vibrating with anxiety. I woke up because a kid turned the bathroom light on. I need more sleep. But I’m AWAKE.
Yesterday we went to the kid dentist. Both kids got A+ from the dentist. I feel weird about them getting graded. After telling Shanna with great enthusiasm that her teeth were perfect the dentist looked like he was sucking a lemon when I said that Shanna has been brushing and flossing herself for a bit over a month now. “That’s not ok. She’s not able to get her teeth clean yet.” …. did you or did you not just tell me that her teeth were perfect?
He’s also concerned about the size of Calli’s tonsils. Especially given that I do the gasping for air thing that probably means I have sleep apnea. The dentist also bitched me out for that. I should go do a sleep study and seek treatment because apparently sleep apnea can take up to six years off your life.
“You don’t understand. That gasping for breath sends your body into fight or flight mode. That can shorten your entire life span.”
“Uhm, with all due respect I have PTSD and live in a hypervigilant hell of fight or flight every day. I don’t think the sleep apnea is what is going to kill me. But thanks for your concern.”
He looked taken aback at that return.
I spent two hours reading about autistic adults yesterday. I have some ideas about how to manage my current boundary problems with a friend. I’m going to need to solve them and not expect a fix from my friend. Some things can’t be fixed by other people. Some things you have to do yourself. He can’t guess where my boundaries are.
I don’t want to stop weekly visits. But I do want to stop having to spend seven days processing each visit before another one happens to rocket me into feeling angry, used, and like I want to beat the shit out of someone non-consensually.
I think step one is going to be, “I would like to stop discussing the bdsm community with you at all. I can’t be free to say what I want to say in front of my kids and you say more than I think is appropriate and then I can’t respond and then I’m just fucking pissed. I need to not do this.”
That needs to be step one. If you can’t spend a two hour visit talking about something other than the bdsm community then I need to make the visits less frequent. Too much is leaking out around my kids. Not to mention that I’m only tangentially involved in the scene at this point and I really don’t need to be spending my time freaking out about what other people are or aren’t doing. I don’t need this shit.
That is step one. That is as close as I can get to not black and white thinking on this. Move the goal post. I don’t need to end the visits immediately because I’m experiencing too much emotion. I need to figure out how to have less emotion. It’s not “all his fault” I am having these feelings. But having theoretical conversations about what other people should or shouldn’t do causes me more distress than happiness and I would like to stop doing it.
That doesn’t mean my friendship has to go away. Let’s just have a bright shiny change of topic. All the autistic forums recommend going for as blunt and straightforward as possible. “I’m experiencing a full week of activation after our visits and I need that to change. One idea I have is that we could take the topic of the bdsm community off the table for a while and I can see if that is the problem. If that isn’t the way to solve the problem I may ask for further modifications in the future but for now I’d like to start by talking about other things. It’s only two hours. Surely we can find something else to talk about.”
I love you. I value you. I want you to exist not only in the abstract world but in my world. Right now I’m spending seven days a week being pissed off at you and that isn’t working for me. Let’s try something else.
People don’t trigger me because they are wrong or bad or pick a negative adjective. People trigger me because I have a long personal history of crap. My emotions reside inside my body and aren’t the fault of anyone. If I need to manage myself differently that doesn’t mean that someone else is wrong.
I wish I found my boundaries without feeling this much destructive rage. That would be useful. Future Goal And All.
I asked a friend how she handles her autistic son when he’s on a topic she doesn’t want to talk about. She said she tunes him out.
Tuning someone out is hard for me. I do kind of the antithesis of tuning my kids out. I’m nosy, probably borderline invasive (if I listen to my kids this much when they are 12/14 it will probably be an invasion of their privacy–I tell myself that small children have different boundaries) and I believe that the only way I can know my kids are getting what they need is if I provide it. I don’t trust that things will run smoothly unless I micromanage the fuck out of it. (I understand that other people go through life without micromanaging and things turn out fine. Bully for you. I have issues I’m managing.)
We’re always solving yesterday’s problems.
I think it’s funny how people say things to me and it becomes a major touch-stone theme in my writing for years. These little phrases. I am made up of thousands of people. I steal their words and ideas and sometimes their boundaries.
Sometimes loving someone means deciding, “I would rather not talk about _________ with you.”
It has been very rare in my life that someone has been able to provide me with such clear boundaries. I am slaveringly grateful when people can state clear boundaries around conversation. Otherwise I tend towards the “inappropriate”.
It is hard for me to guess which parts of my normal day to day life might traumatize other people. Ok, maybe not my current day to day life, but my past. I can talk about some things with some people and it’s bloody hard to guess what with whom. If I slip then I am a terrible person for traumatizing someone. So I hear. It’s hard to get over having therapists tell me that I should never discuss my history with lay people or I am being abusive.
“Group therapy isn’t appropriate for people with your level of trauma. You will just be abusive with the group members.”
Ouch.
I’m supposed to shut the fuck up. No, I’m not supposed to shut the fuck up. I’m really not. I’m not going to no matter how much some people wish I would. Noah likes reading it. He’s my ideal reader. Stephen King tells me I only need one and then I’m golden.
To abruptly change the topic: Calli is in a phase. I ask what she wants. I say ok, sure thing and move towards doing the thing. She changes her mind. I say, “I’m already 75% done with foo”. She explodes and starts screaming at me about how she wants the opposite of foo. I am terrible. I don’t love her. Hysterical crying. Flailing of arms and legs. It is the end of the world. If we are out in public I pick her up and carry her back to the car and drive home. If we are home I ask her not to scream in the living room and carry her to a screaming room if necessary. Then I need some time alone.
I’m too highly activated all the time. I’m worried about my reflexes right now. I’m punchy and twitchy.
I’m trying to just roll with it. I know from books (thank you child development books. You are the best things in the whole fucking world) that this is normal and standard and the best way to handle it is to teach emotional self regulation slowly and patiently. Validate the emotions and help them learn to calm down. Yup, you really are that disappointed all of a sudden. That sounds hard. Sometimes when you make a choice you have to live with it or get nothing. That’s how life goes. Yup, it’s terribly hard sometimes. Sometimes it is so hard you cry. I can see you understand that step already.
But it takes so much patience and calm. My well runneth dry.
A while ago I told a friend that her husband required the same kind of patience from me as her children. She looked kind of startled. A fair number of my friends (I almost defaulted to the sexist “male friends” but then I stopped and thought–nope it’s not gender related I just have issues with people.) require the same kind of “must stop and patiently explain what I’m thinking to someone belligerent and unfamiliar with my vocabulary” kind of behavior from me. I totally don’t mind doing it with kids. That has always been easy. Explaining “down” doesn’t bother me. It feels just and I don’t get nearly as frustrated.
I’m kind of a raging asshole when it comes to adults. I didn’t try to go for being a college professor for reasons. I don’t have fucking patience for them. Shut the fuck up and get your shit done you stupid fucking piece of shit.
Yeah, 8th period social club was way more effective as a teaching method.
(I don’t really believe that people are stupid pieces of shit for not knowing things I know. But I’m really not a very nice person in my head.)
No one has commented on my lack of tact in years. I wonder what that means about my social skills. It isn’t that I spend less time with people. I spend time with very different kinds of people. And I’m not hunting for sex. That probably is the biggest mellowing feature.
These days hunting for sex is more like shooting fish in a barrel. It changes the vibe. Hunting for sex is one of the least activating activities in my life. *nudge* “Wanna?” “Yes!”
It’s flattering but not exciting in the same way. It’s nice. I’m not complaining. Ok, moving on.
Hi, non-neurotypical brain let’s try to figure out how to make you interact with my trauma damaged brain without an explosion from adrenaline. Your tics and my tics have got to combine. We can find a way. Damnit. Fourteen years. I don’t want to lose more long time friends. Sure you piss me off. Everyone else does too if I spend enough time with them.
If I avoided people because they pissed me off I would never leave my house. Which would suck.
People delight me more than they bother me. It’s hard to hold that focus sometimes. That’s the extremist black and white thinking. “I love you. I hate you.” Me and Taylor Swift.
Our babysitter keeps asking for modifications based on how tired she is. “I know we said going until x’o’clock but can it be x-2’o’clock because I haven’t been sleeping well.”
On one hand I have thoughts of “unprofessional” and on the other hand I feel so delighted by her confidence in caring for her body. She’s a growing kid. I’m glad she is smart enough to prioritize sleep. I am unflaggingly sympathetic and willing to be flexible. I need her more than she needs me. I’d better fucking be nice.
In every loving relationship there is a power imbalance. Whoever loves the most has the least power. That’s what my mama taught me.
Is it mercenary to take stock of whether I need someone more than they need me and plan my behavior accordingly? It means I am much more of an asshole with people who need me more than I need them. That’s not exactly cool. I’m not talking raging asshole, but I’m less flexible.
Are those enough words so that I can sleep? Maybe. I have improved the ergonomic set up but it isn’t perfect yet. I need a better keyboard. The neck angle isn’t perfect but it has improved. At least I’m using the tray and a better mouse already. I do need a better keyboard. This one is way too narrow for me. I’ll save it for kidlets.
Just breathe.
I should post pictures of my garden. It’s beautiful. I have tulips and narcissus and sage and rosemary and the Japanese lantern all in bloom. The rose leaves are beautifully red. The Joseph’s Coat roses in the back are starting to bloom. The strawberries and blueberries have lots of flowers and starting fruit. The blackberry isn’t going to give me fruit this year. The hacking stunted it. I get it. Sorry, dude. I needed to change your trellis. The plum tree is covered in flowers. Yesterday I saw the buds on the cherry tree finally start opening.
Spring is here. We have peas, beans, and squash left to plant. The corn has appeared but I need to let it get a bit higher before I plant the peas and beans that will climb up the stalks. Then a few weeks after that the pumpkins.
The artichoke is huge but I don’t see signs of fruiting yet. I have no idea what it will look like. The asparagus is coming right along. I don’t eat them this year. Next year.
Patience, grasshopper. You have a lifetime.
My neighbor dropped off a few more strawberry plants. I’m thrilled to have them. I have a whole bed of strawberries and one of those strawberry pots. I was given it. I use pots that I’m given. We spend so much money on strawberries every year. At least $200/year on strawberries. I’d like to grow a whole bunch. I understand that Noah and I will eat fewer than when we have no small fructivores in the house. Still.
When I am old I hope my intestine will allow me to largely live on raw fruit from my back yard and meat. That would be rad. Way less cooking. I’ll get me a George Forman grill and I’ll be golden. Rice in a rice cooker. Fuck vegetables. That sounds like the amount of cooking I like doing.
I eat vegetables now because I’ve been brainwashed into thinking my kids must eat them and I must model eating them.
I’m going to take six years off my life due to sleep apnea. Heh. If I manage to live long enough to die of natural causes That’s a win.
It’s interesting how different people have different goal posts.