Tag Archives: what to say

Repentance and Grace

We often have to sit down and talk about the fact that we knew therapists were not available here like they were in California so we have to help each other. We talk about the problems with that because a therapist is 100% on your side and a family member has their own agenda. I try hard to consciously and deliberately say out loud when I am saying something that is more from a therapy point of view (this might fuck me over but you need to think about it anyway) and when I am speaking as a parent and a member of the family unit (this will sound like I am not on your side… well… I am in as much as I am part of a system and systems work to preserve themselves).

This morning was such a morning. Puberty is terrible and it destroys your centre of gravity. It changes how you think about yourself, how you perceive other people’s behavior, and how you emotionally respond to things that are upsetting. You get this whole reset and it’s rough. It being rough is in no way shape or form a negative comment on any particular person. It isn’t your fault that this is hard. You are not failing or being bad and you are definitely not crazy even though this process feels so completely out of control. It’s a nightmare and there is no amount of money that could talk me into going through it again…. and I’m a hardy soul.

We talked about how other people remembering things differently is not exactly the same thing as gaslighting. Gaslighting is deliberately and purposefully fucking with someone’s reality as a way of controlling someone. Having a brief conversation that is very important and memorable to one person and easily forgotten by the other person is not gaslighting. It’s sucky! It’s frustrating! It can be super challenging to deal with! It’s not the same thing as gaslighting.

So then we get into: when you feel betrayed/upset/let down how can you ask for a repair attempt in a way that will actually get you what you want? It’s not about “you shouldn’t feel this way” and I’m not tone policing you and saying that you don’t deserve the repair attempt unless you are perfect. I’m saying that we are all human beings. Human beings almost always feel defensive when someone blows up at them. Sometimes the issue is so important that everyone must be held to working it out even if someone was blowing up and that makes the process hard. Sometimes the issue is fairly small and you won’t get what you need unless you play the game. It sucks. It is reality.

Then we came up to the fact that every single one of us messes up and is the person who makes an agreement then fails to keep it sometimes. No one is the bad one and no one is the good one. We all have to learn how to manage each others personalities and it’s a challenging road. We all have to learn how to manifest our frustrations and our difficulties and still live up to our own internal code for who we want to be.

Then of course we did a derail into how many, perhaps most people, are told what their moral code should be. Maybe their parents instill religion as the path to righteousness, maybe someone just imposes secular beliefs but in most families most parents believe they have the right to be the Authority to their children. Noah and I came out of our childhoods believing that each individual person has to be their own Authority and parents do not have all the answers. So we push our children towards figuring out their own beliefs as hard and as often as we can. That’s why you have to figure out how to live up to your own sense of right and wrong.

I said that sin is when you believe in a rule deeply and you break it anyway. People do that. It’s part of the human condition. You don’t have to be religious or have the rule imposed by an outside party in order to sin. All you have to do is betray yourself and everyone does that. That is where the concept of repentance comes in. You repent when you figure out that you fucked up and you need to bear the weight of that and you need to figure out how to move forward with being a better person. It’s a hard and never ending task. The older you get the more you have to repent because that’s just how life goes. No one lives up to their own rules whether they are self imposed or outside imposed. It sucks.

And that is where grace comes in. Grace is when you look at someone who has done something shitty in your direction and you decide to forgive them because you know that you also do shitty things and you believe that this was an error and not malicious. Grace is allowing people to come back from mistakes and sometimes grace involves choosing to overlook the crappy way someone expresses a problem or a solution and just accepting that their heart is in the right place even though they are still a giant turkey butt.

We are all flawed creatures who are trying to cope in a world we didn’t create and we can’t control. It’s hard. It hurts. We will all get wounded and we will all bear scars from our own mistakes and the mistakes of other people. The more grace we give ourselves and the people around us the less we will have to repent. The more love and acceptance we give to the people around us who are doing the best they can the more we will get that same gift back.

To this end I will do everything in my power to speak gently when I want to scream. I will try again when I want to quit. I will repeat myself when I want to never ask again. Because I love you and I want this with everything I am. This is my chance at a happy family. I will not always do the right thing but by golly I will keep trying.

Complications

I had the stitches out yesterday from the surgery I had on the 31st. Then the wound popped open and I had to go see another doctor to have the giant gaping wound restitched. Apparently that’s called suture dehiscence and it’s common for folks with EDS. I’ve been doing research this morning. Apparently EDS means I should have had my sutures left in for twice the normal healing time. I am going to figure out how to get a bunch of research on EDS to my medical team. I mentioned on the operating table that I have it and the surgeon said it wouldn’t matter.

My kids were understandably pretty freaked out. MC told me she had an unhappy tummy when she thinks about the wound.

I said that being afraid of the wound is like being afraid of riding your bike. I am going to die someday–that’s the end result of being alive. You are going to fall off your bike sometimes and the only thing you get if you are afraid of it is that you can’t enjoy the time you are on the seat. I am going to die some day and my body has a lot of complications that I’m trying to manage so that I can stay alive as long as possible. My body has more complications than average and that means I have to do a lot of research and I have to advocate for myself because keeping me alive isn’t the same process as it is for other people. If we waste a lot of time being afraid of my eventual death we won’t get to enjoy the time I am alive.

This research is extra important because EC has the same condition and the more I find out about myself the more I can save her from suffering through similar issues. She can advocate for herself earlier and harder.

Now I need to figure out how to get this research to my medical team. It’s entirely from highly reputable/peer researched locations. I’m not researching on blogs (Even though blogs are often pretty fucking accurate) so I hope this is taken seriously.

I need to assume this will take twice as long to heal as “normal”. I need to have the stitches stay in longer than expected and I need to say that to the doctors involved in my case. I need to be proactive because I am the only person who suffers from these fuck ups. My back hurts a lot again today. There was partially healed skin there that ripped open. It doesn’t hurt as much as it did the day of the surgery but it probably hurts as much as it did on day two or three post surgery.

I almost certainly tried to bounce back faster than I should have. I feel so much shame for “being lazy” when I don’t help and do chores around the house. But here I am with more complications post-surgery because I didn’t let my body have the time it needed. It’s like what happened after the septoplasty when I probably had three or four times as long of a recovery because I didn’t take the twice as long I should have taken.

Ugh.

I should probably sit in this chair for ten days or more this time. That’s hard for me. I must work to feel worthy. But if I don’t rest I will be less able to work in the long run. It’s complicated.